Fundraising vs MS

Three years ago today I was diagnosed with Relapsing Remitting Multiple Sclerosis. I have been arranging a fundraising event to raise money for a local charity that helps people with various neurological conditions including MS. This time next week, at DW Fitness First, my fellow gym members and I will be taking on an 8 hour Spinathon – back to back spin classes to raise money for The Swindon Therapy Centre for MS. 

In the past 3 years, I have taken my diagnosis and used it to change my diet and exercise regime and found that I can manage my symptoms through both of those, along with a heap of mental strength. Don’t get me wrong, my MS gets me down; I suffer on a daily basis with dizziness, numbness, constant pins and needles, vision problems, mood swings, fatigue, the occasional leg collapse (which has been happening more regularly recently, due to stress in various aspects of my life), the side effects of my medication and an overwhelming sense of dread as MS is so unpredictable from day to day, but I am still able to do things that a lot of people with the more progressive forms of MS can’t. I’ve been to the Therapy Centre a few times and realise I’m very lucky to be able to manage my symptoms myself. A lot of people who use the Centre rely on it to help them through their journey and it feels like a safe haven in such an unpredictable world.

The best thing I have read about living with something like MS is to “be as well as possible, for as long as possible”, so I wanted to do something whilst I am able to; to raise money for a Centre that helps people who have limited abilities because of a condition they didn’t ask for, but one that chose them and changed their lives.

I have to carry this illness for the rest of my life, so I can either wallow in the weight of that, or I can fight every day and make it a good one.

All we can do is always maintain hope and never give up.

2 thoughts on “Fundraising vs MS

  1. Many years ago I raised money for the therapy centre with the help of all my staff at The JJs Hair Group The centre brought floor matts to help With exercise for the ms patients.

    Little did I know later on in my life at the age of 40 after many tests at different hospitals around the country I too discovered I had remitting ms.

    I have battled this condition for 20 years, and fully understand where you are coming from!! I work every day Hairdressing , everyday I have a different feeling in my body recently numbness of my fingers! but I’m a very positive person and I’m not going let it get me Down!

    I feel it’s a condition that is not talk about enough!! Generally people do not understand their should be more info about ms I wish you all good things and if there is anything I can help you with please contact me Thank you for listening to my words

    Jane Jennings

    Get Outlook on for iOS ________________________________

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  2. Thank you for sharing this post. I have been batting with Relapsing Remitting MS for almost 18 years now. Goodness it can be challenging, but it is amazing the strength we have when it is needed. It is sad that people really do not understand what we live with and say they want to donate and never do. I loved reading what you wrote and definitely look forward to reading more! I hope if you have time, if you haven’t already, I hope you will check out my site. I do the best I can to spread positivity but also keep things real! I hope you are doing well and I hope you have a nice evening!

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